Parents urge NJ to mandate health insurance coverage for rare pediatric condition

Parents of children with rare syndromes known as PANS or PANDAS want the state to mandate insurance coverage.

By: Lilo H. Stainton

Outlets: New Jersey Monitor

Published: September 14, 2026

Words: 2,101

Last Updated: 4 days, 3 hours ago

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Cece Moos has spent 17 years learning how to live with a rare autoimmune disorder that can attack her brain and quickly send her into a physical and emotional spiral.

It took three years to diagnose, treatments are largely experimental, and there is no cure.

For Moos, who lives in Bernardsville and is now 25, attacks can be held at bay with a simple over-the-counter antihistamine. But some patients with the condition …

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